Today, I have continually been filled with so much warmth and love over all the support people have shown me for speaking my mind. Many, many, many times over the course of my 30 years on this planet I have been told I talk too much. Or too loud. Or too passionately. Too, too, too.
As my friend Jessi says, I've always been "very."
As you can imagine, over the course of those 30 years, I've kept my mouth shut or stopped myself in the middle of a rant because of the discomfort it causes the people around me. (I know, probably hard to believe this has been me being quiet.)
I've finally had enough. Today, I realized that I was given this loud voice, this passion, this fascination with the spoken word for a reason. To use it.
Too often, people feel shame for needing help. They feel even more shameful when they actually get it. Being that honest about my situation today made me feel more at peace with the fact that I have nothing to be ashamed of.
Mine is not the only story that needs to be told, though. There are countless others whose situation is far worse than mine, they just don't want to advertise it. I think it's time they did. If only more people stood up and voiced exactly what they feel, without fear of castigation from society, their friends, their church, whoever. What if we all used the voices we were given to make the necessary positive change for our species? What if we all stood up for each other, like a huge family? What if we all took the ideas of those that have sought peace throughout history and made them a reality?
Although, I am aware these may be pipe dreams, given the current state of society. People killing each other over property, publicly ostracizing another for their sexual orientation or religious views. I live in a country where it is acceptable to call a woman you've never even met a slut on a public medium. Hell, someone who did just that had his own cheering squad. What is the world coming to when an entire chunk of the population seems to be alright with all the hate being tossed around like party favors?
After the article I was featured in came out today, people I've never even met were judging me. Most people were really supportive and gave me the warm and fuzzies, but some....some just made an assumption about my character or flat out informed me of all the other services I must be getting because, let's face it, if I put my hand out once, I'm probably not trustworthy enough to be honest about how much I'm getting. One fine gentlemen even said my GPA doesn't prove that I work hard and that I'm probably not going to pay back my student loans after I graduate. Wow. Thank you, sir, for proving my point.
Usually, when people say things like that to me, I freeze. Or get really enraged. Sometimes I cry. But today was different. I did none of these things. I simply thanked the people who supported me and thanked me for sharing, and the ones who decided to be ugly, well, I sent them all my love and wished them to find peace. They're gonna need it.
While I know I may never get all the way down my list of correcting social injustices all over the world (it's really gotten quite out of hand in the last year or two), it doesn't mean I won't at least make a dent in it. There is work to be done and I'm not getting any younger.
Thursday, September 20, 2012
Friday, June 15, 2012
Tipping point
I can't sleep. I know why. Too many things on my mind. The boy, the dogs, the world outside my door...they all lie there, mocking me with their restfulness. I haven't had a night like this in a while.
Monday morning, I finally heard the words I've been waiting to hear for months now: "your son is on the autism spectrum."
My. son. has. autism.
No, wait, you must have me confused with someone else. It finally hit me that I had still held onto some bit of denial where that was concerned. Deep down, I was sure that after those 4 hours of testing, this woman would come back and tell me that something ELSE was causing all of this and that he just needed to grow out of it. He would start talking VERY soon and go on to lead a normal life; with no trace of the troubles that plagued his development early on.
Surely THAT was what I really prepared to hear....but, alas, Monday I would not hear those words.
So I sat there, at what felt like the biggest round table in a room with the grayest walls and the tallest ceilings. Alone. Feeling like I was four feet tall.
My. son. has. autism.
No matter what that woman said after that, it wasn't going to trump those words playing over and over in my head.
I didn't really hear her when she asked how I felt about it. Nor did I want to hear when she told me I would have to find six different therapists soon. Nor did I give a damn when she told me I needed to get a therapist of my own. Nope. All I could hear were those words in my head: my. son. has. autism.
I've spent the better part of the last 2 years hearing that word but it didn't really resonate with me until Monday. Now, I couldn't run away from it. It would be mailed to me in the next two weeks along with a stack of papers that outlined just what is "wrong" with my child.
There is no pain on this earth that compares to the pain you feel when you can't help your child. I feel useless. I feel like a failure. I feel cheated. I feel lost. I feel, I feel, I feel.
But mostly, I feel tired.
Tired of being angry with the universe for making my child such a mystery. Tired of hearing that "A" word. Tired of feeling compelled to explain to people why my four-and-a-half year old son has the vocabulary of a two-year-old or why it's okay that he needs to go play by himself sometimes when he gets overwhelmed. Tired of being the most important person in his life.
Tired, tired, tired.
On top of all this, I'm supposed to be a functioning member of society. How is that even possible when all I can hear in my head are those words.....
_______________________________________________________________________
This afternoon, I cried. I cried and I cried and I cried and I talked to the social worker at the boy's school about all of this. Apparently, my strife was written all over my face. She listened, just like I'm sure she has listened to hundreds of people before me in the same situation. She hugged me and reminded me of all the positive things about that little man that is the source of constant worry for me. Because she knows him almost as well as I do.
She reminded me that this sucks and that I am grieving the loss of that dream I had for my child.
She reminded me that I must give myself some time to let all of this sink in. That I have to just focus on getting through today. That I'm not Wonder Woman. That I am not going to lose my mind.
Today, that table was much smaller, I was much taller, the ceilings much lower and walls much whiter.
Today, I feel a little less broken.
Monday morning, I finally heard the words I've been waiting to hear for months now: "your son is on the autism spectrum."
My. son. has. autism.
No, wait, you must have me confused with someone else. It finally hit me that I had still held onto some bit of denial where that was concerned. Deep down, I was sure that after those 4 hours of testing, this woman would come back and tell me that something ELSE was causing all of this and that he just needed to grow out of it. He would start talking VERY soon and go on to lead a normal life; with no trace of the troubles that plagued his development early on.
Surely THAT was what I really prepared to hear....but, alas, Monday I would not hear those words.
So I sat there, at what felt like the biggest round table in a room with the grayest walls and the tallest ceilings. Alone. Feeling like I was four feet tall.
My. son. has. autism.
No matter what that woman said after that, it wasn't going to trump those words playing over and over in my head.
I didn't really hear her when she asked how I felt about it. Nor did I want to hear when she told me I would have to find six different therapists soon. Nor did I give a damn when she told me I needed to get a therapist of my own. Nope. All I could hear were those words in my head: my. son. has. autism.
I've spent the better part of the last 2 years hearing that word but it didn't really resonate with me until Monday. Now, I couldn't run away from it. It would be mailed to me in the next two weeks along with a stack of papers that outlined just what is "wrong" with my child.
There is no pain on this earth that compares to the pain you feel when you can't help your child. I feel useless. I feel like a failure. I feel cheated. I feel lost. I feel, I feel, I feel.
But mostly, I feel tired.
Tired of being angry with the universe for making my child such a mystery. Tired of hearing that "A" word. Tired of feeling compelled to explain to people why my four-and-a-half year old son has the vocabulary of a two-year-old or why it's okay that he needs to go play by himself sometimes when he gets overwhelmed. Tired of being the most important person in his life.
Tired, tired, tired.
On top of all this, I'm supposed to be a functioning member of society. How is that even possible when all I can hear in my head are those words.....
_______________________________________________________________________
This afternoon, I cried. I cried and I cried and I cried and I talked to the social worker at the boy's school about all of this. Apparently, my strife was written all over my face. She listened, just like I'm sure she has listened to hundreds of people before me in the same situation. She hugged me and reminded me of all the positive things about that little man that is the source of constant worry for me. Because she knows him almost as well as I do.
She reminded me that this sucks and that I am grieving the loss of that dream I had for my child.
She reminded me that I must give myself some time to let all of this sink in. That I have to just focus on getting through today. That I'm not Wonder Woman. That I am not going to lose my mind.
Today, that table was much smaller, I was much taller, the ceilings much lower and walls much whiter.
Today, I feel a little less broken.
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